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Tyson's Fight
Peter Henderson
Tyson's Fight
Story
I'm taking part in Million Steps for SMA, a major fundraiser for Spinal Muscular Atrophy Association of Australia. I'm walking for the SMA Kids who can't, and for my grandson Tyson Henderson, who has SMA type 2. Spinal Muscular Atrophy (SMA) is the number one genetic killer of children under the age of 2, and is an often fatal disease that destroys the nerves controling voluntary muscle movement, which affects crawling, walking, head and neak control and even swallowing. SMA is one of the most prevalent genetic disorders. One in every 6000 babies is born with SMA. One in every 40 people carry the gene that causes SMA. The child of 2 carriers has a 25% chance of developing SMA. At this stage there is no treatment or Cure, but with your help we can assist the families, as well as increase the awareness of SMA, and fund researchers to find treatments or a cure. Please support me with a donation and make a difference today.
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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