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Millions teps for Chloe and SMA
Julie Carmel
Millions teps for Chloe and SMA
Story
I am grand mother of Chloe who has SMA. to raise awareness of the devestating effects of SMA on children and families I am planning on waking 1,000,000 steps (from Melb to Sydney) over the 2010-2011 Christmas period. As a means of training I am particpating in lots of walks, The run for the kids on March 18th as part of team Chloe, I'm taking part in Million Steps for SMA, the Mothers day classic, million paws walk and any other walks that occur this year.
The main event is the walk at Christmas.I challenge others to join me for the whole walk or for a few 100 steps what ever you can do.
ALL money raised will go to SMAAA to benefit all our children.
Help me raise awareness about SMA and benefit all our children
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Spinal Muscular Atrophy Association of Australia Inc
The Spinal Muscular Atrophy Association of Australia Inc. is the first national service supporting families and individuals affected by Spinal Muscular Atrophy. As a non-government funded charity we rely solely on philanthropic bodies and fundraising to provide support, information and assistive technology to members. Spinal Muscular Atrophy is a genetic disease divided into 4 types; leading to progressive muscle weakness and wastage. This wastage of muscles not only affectes the sufferes external muscles like arms and legs, but all their internal muscles like breathing, coughing and swallowing. The Associations Equipment and Resource Library has been developed to allow members to utilise specialised equipment, aids, and educational tools. ABS documents that 52 Australian lives 1. are lost to SMA and related syndromes ( Motor Neurone disease) each month. As there is no treatment, much less a cure, our fundraising also contributes to vital research. With 1 in 35 people indiscriminately carrying the SMN gene; greater awareness provided by SMA Australia alone is crucial to the education of future generations.
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